als

  1. Matt's story: I'm doing fine

    I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.

    matt 2x

    Lee mas »
  2. David's story: Nothing to lose

    Two and a half years after his diagnosis, David found a medicine with off-label application for MND.

    david 2x

    Lee mas »
  3. China approves edaravone for ALS

    Radicut/Radicava (edaravone), shown to slow the progression of ALS, is now approved for patients in China.

    China flag thumbs-uo hand gesture

    Lee mas »
  4. Marc's story: A brief look at life with ALS in the US

    After 3 years of living with ALS, Marc found a new medicine on the other side of the world. 

    marc 2x

    Lee mas »
  5. Mark & Dee's story: For better, not worse

    With tears, laughter and hope, Mark and his family find their own way to cope with ALS.

    mark and dee 2x

    Lee mas »
  6. Peter's story: Life goes on

    Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.

    peter golfing close

    Lee mas »
  7. Bakr's story: living with ALS in the UAE

    Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

    bakr and wife daad blue sides

    Lee mas »
  8. FDA gives go-ahead for MN166 (ibudilast) to begin phase 2b/3 clinical trials

    Approval for next phase of clinical trials puts ALS patients one step closer to accessing new treatment shown to slow disease progression.

    FDA Ibudilast molecule and pills

    Lee mas »
  9. Teresa's story: how ALS changed my life

    Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.

    teresa: caregiver story

    Lee mas »
  10. Anatoly's story


    I was looking for my friend, he has motor neuron disease (also known as amyotrophic lateral sclerosis - ALS) from working for Chernobyl nuclear station crash removal.

    Lee mas »
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