Marcus was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016. For the past four years he has been committed to raising awareness about the underfunded disease and the path to finding a cure.
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Posted: September 27, 2019Categories: Stories
I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.
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Two and a half years after his diagnosis, David found a medicine with off-label application for MND.
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After 3 years of living with ALS, Marc found a new medicine on the other side of the world.
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With tears, laughter and hope, Mark and his family find their own way to cope with ALS.
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Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.
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Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.
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Posted: February 05, 2019Categories: Stories
Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.