als

Marcus was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016. For the past four years he has been committed to raising awareness about the underfunded disease and the path to finding a cure.

I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.

Two and a half years after his diagnosis, David found a medicine with off-label application for MND.

Radicut/Radicava (edaravone), shown to slow the progression of ALS, is now approved for patients in China.

After 3 years of living with ALS, Marc found a new medicine on the other side of the world. 

With tears, laughter and hope, Mark and his family find their own way to cope with ALS.

Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.

Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

Approval for next phase of clinical trials puts ALS patients one step closer to accessing new treatment shown to slow disease progression.

Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.

I was looking for my friend, he has motor neuron disease (also known as amyotrophic lateral sclerosis - ALS) from working for Chernobyl nuclear station crash removal.

When the US Food and Drug Administration announced in May 2017 that a new drug had been approved for the treatment of ALS, my father and I were thrilled.