Stories

  1. Matt's story: I'm doing fine

    I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.

    matt 2x

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  2. David's story: Nothing to lose

    Two and a half years after his diagnosis, David found a medicine with off-label application for MND.

    david 2x

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  3. Fiona's story: PBC, my mother and me

    fiona 2xAfter 40 years with primary biliary cholangitis, Fiona's mother is still alive thanks to her daughter's dedication and a liver transplant.

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  4. Marc's story: A brief look at life with ALS in the US

    After 3 years of living with ALS, Marc found a new medicine on the other side of the world. 

    marc 2x

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  5. Mark & Dee's story: For better, not worse

    With tears, laughter and hope, Mark and his family find their own way to cope with ALS.

    mark and dee 2x

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  6. Peter's story: Life goes on

    Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.

    peter golfing close

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  7. Bakr's story: living with ALS in the UAE

    Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

    bakr and wife daad blue sides

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  8. I love someone who is rare

    In recognition of Rare Disease Day, our colleague, Sera, shares her story of her dad's fight with Multiple System Atrophy (MSA). 

    rare patient with heart

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  9. Teresa's story: how ALS changed my life

    Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.

    teresa: caregiver story

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  10. Alexandra's story

    Alexandra was lucky enough to be on a clinical trial of the new migraine treatment erenumab (Aimovig) but couldn't access the medicine afterwards until she found TheSocialMedwork.

    Alexandra

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