community

Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

How our community celebrated remission!

As a patient, would you benefit from apps that alerted your support network every time you visited the hospital or had a few spare minutes to chat? Almost definitely, right?

Fighting an illness is rarely as simple as diagnosis-plus-medication-equals-improved-health.

We asked our community of patients what they recommend packing in a hospital bag, and the response was overwhelming.

If you are experiencing ALS too, this page was written specifically for you.

When someone you love is battling illness, it’s natural to want to reach out and help in any way you can. Knowing how you can help isn’t always so clear.