community

  1. Bakr's story: living with ALS in the UAE

    Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

    bakr and wife daad blue sides

    Read more »
  2. Marriages, businesses, and lots of bubbles!

    How our community celebrated remission!

    bride tossing flowers

    Read more »
  3. Apps that help patients stay connected to their friends and family

    As a patient, would you benefit from apps that alerted your support network every time you visited the hospital or had a few spare minutes to chat? Almost definitely, right?

    apps for patients

    Read more »
  4. The three (free!) things that patients told us helped them get through their worst days.

    Fighting an illness is rarely as simple as diagnosis-plus-medication-equals-improved-health.

    woman smiling

    Read more »
  5. 20 Things You Need to Include in your Hospital Bag

    We asked our community of patients what they recommend packing in a hospital bag, and the response was overwhelming.

    luggage

    Read more »
  6. If you have ALS

    If you are experiencing ALS too, this page was written specifically for you.

    Garmt van Soest

    Read more »
  7. 8 Gifts Patients Really Want (From Real Patients!)

    When someone you love is battling illness, it’s natural to want to reach out and help in any way you can. Knowing how you can help isn’t always so clear.

    bed

    Read more »