als

  1. Garmt's story


    In July 2013, Garmt van Soest returned home from a week of kitesurfing, ready to get stuck into some new projects at work and prepare a wedding speech for one of his best friends, Paul.

    Read more »
  2. Bernard's story


    Bernard is a successful entrepreneur. He's tall, well dressed, with salt and pepper hair and a wry grin. He loves his family and is a golf fanatic.

    Read more »
  3. Bill's story

    When the US Food and Drug Administration announced in May 2017 that a new drug had been approved for the treatment of ALS, my father and I were thrilled.

    Read more »
  4. Anatoly's story


    I was looking for my friend, he has motor neuron disease (also known as amyotrophic lateral sclerosis - ALS) from working for Chernobyl nuclear station crash removal.

    Read more »
  5. Anatoly's Story

    This is Anatoly's own story of 'helping a hero'

    Read more »
  6. Dealing with a Diagnosis

    Online counsellor Nicole Hind shares how to help our brains and bodies deal with a diagnosis.

    diagnosis dealing

    Read more »
  7. Edaravone availability in the US - one month to go

    As we await the arrival of edaravone to US pharmacies, patients can access edaravone now through TheSocialMedwork.edaravone best price

    Read more »
  8. Accessing edaravone in your country - the new FDA approved drug for ALS

    What are the results from the clinical studies that led to the approval of edaravone, and how can patients access it in their country?

    edaravone FDA ALS

    Read more »
  9. If you have ALS

    If you are experiencing ALS too, this page was written specifically for you.

    Garmt van Soest

    Read more »