Marcus was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016. For the past four years he has been committed to raising awareness about the underfunded disease and the path to finding a cure.
als
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November 02, 2020
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September 27, 2019
I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.
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September 10, 2019
Two and a half years after his diagnosis, David found a medicine with off-label application for MND.
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August 29, 2019
Radicut/Radicava (edaravone), shown to slow the progression of ALS, is now approved for patients in China.
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July 29, 2019
After 3 years of living with ALS, Marc found a new medicine on the other side of the world.
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July 22, 2019
With tears, laughter and hope, Mark and his family find their own way to cope with ALS.
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July 22, 2019
Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.
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June 17, 2019
Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.
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April 24, 2019
Approval for next phase of clinical trials puts ALS patients one step closer to accessing new treatment shown to slow disease progression.
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February 05, 2019
Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.
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March 12, 2018
I was looking for my friend, he has motor neuron disease (also known as amyotrophic lateral sclerosis - ALS) from working for Chernobyl nuclear station crash removal.
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March 12, 2018
When the US Food and Drug Administration announced in May 2017 that a new drug had been approved for the treatment of ALS, my father and I were thrilled.
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March 12, 2018
Bernard is a successful entrepreneur. He's tall, well dressed, with salt and pepper hair and a wry grin. He loves his family and is a golf fanatic.
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March 12, 2018
In July 2013, Garmt van Soest returned home from a week of kitesurfing, ready to get stuck into some new projects at work and prepare a wedding speech for one of his best friends, Paul.
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January 05, 2018
This is Anatoly's own story of 'helping a hero'
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September 04, 2017
Online counsellor Nicole Hind shares how to help our brains and bodies deal with a diagnosis.
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July 19, 2017
As we await the arrival of edaravone to US pharmacies, patients can access edaravone now through TheSocialMedwork.
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What are the results from the clinical studies that led to the approval of edaravone, and how can patients access it in their country?
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March 16, 2016
If you are experiencing ALS too, this page was written specifically for you.