Patients

10 modern tips and tricks for online safety.

I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.

Two and a half years after his diagnosis, David found a medicine with off-label application for MND.

After 40 years with primary biliary cholangitis, Fiona's mother is still alive thanks to her daughter's dedication and a liver transplant.

After 3 years of living with ALS, Marc found a new medicine on the other side of the world. 

Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.

With tears, laughter and hope, Mark and his family find their own way to cope with ALS.

Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

Downloadable fact sheet answering the most common question TheSocialMedwork asked by healthcare providers.

In recognition of Rare Disease Day, our colleague, Sera, shares her story of her dad's fight with Multiple System Atrophy (MSA).