Patient stories

  1. Abdur’s story

    Abdur’s story

    Abdur was diagnosed with ALS in 2016. His uncle, Jamashaid, shares his story and how Radicut (edaravone) has helped Abdur to live better with ALS.

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  2. Francine's story

    Francine's story

    My father, who was a general practitioner before he retired, was with me when we heard the official report of the neurologist. Afterwards, sitting in the car, he had to digest the fact that both his son and daughter had multiple sclerosis.

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  3. Danny's story

    Danny's story

    In March 2014, Danny had just become a father for the second time when he was diagnosed with a rare form of cancer in his liver.

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  4. Vito's story

    Vito's story

    My mother was diagnosed with lung cancer and had been treated with a standard chemotherapy combination therapy and Xalkori (crizotinib), the other first in class before Alecensa...

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  5. Mirjam's story

    Mirjam's story

    In March 2014, at the age of 39, Mirjam was diagnosed with B-cell non-Hodgkin lymphoma (an aggressive fast-growing cancer).

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  6. Garmt's story

    Garmt's story

    In July 2013, Garmt van Soest returned home from a week of kitesurfing, ready to get stuck into some new projects at work and prepare a wedding speech for one of his best friends, Paul.

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  7. Hein's story

    Hein's story

    Hein Jamboers was diagnosed with melanoma in 2009.

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  8. Abigail's story

    Abigail's story

     Abigail was diagnosed with head and neck cancer. She tried various forms of chemotherapy straight away, but they kept failing.

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  9. Bernard's story

    Bernard's story

    Bernard is a successful entrepreneur. He's tall, well dressed, with salt and pepper hair and a wry grin. He loves his family and is a golf fanatic.

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  10. Bill's story

    Bill's story

    When the US Food and Drug Administration announced in May 2017 that a new drug had been approved for the treatment of ALS, my father and I were thrilled.

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