Patient stories

  1. Fiona's story: PBC, my mother and me

    fiona 2xAfter 40 years with primary biliary cholangitis, Fiona's mother is still alive thanks to her daughter's dedication and a liver transplant.

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  2. Marc's story: A brief look at life with ALS in the US

    After 3 years of living with ALS, Marc found a new medicine on the other side of the world. 

    marc 2x

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  3. Peter's story: Life goes on

    Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.

    peter golfing close

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  4. Mark & Dee's story: For better, not worse

    With tears, laughter and hope, Mark and his family find their own way to cope with ALS.

    mark and dee 2x

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  5. Bakr's story: living with ALS in the UAE

    Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

    bakr and wife daad blue sides

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  6. I love someone who is rare

    In recognition of Rare Disease Day, our colleague, Sera, shares her story of her dad's fight with Multiple System Atrophy (MSA). 

    rare patient with heart

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  7. Teresa's story: how ALS changed my life

    Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.

    teresa: caregiver story

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  8. Zoran's story

    This is a personal account of Zoran, a client of TheSocialMedwork's who made it his life to help raise awareness of amyotrophic lateral sclerosis (ALS) in Bosnia after his own diagnosis.

    Zoran Image

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  9. Alexandra's story

    Alexandra was lucky enough to be on a clinical trial of the new migraine treatment erenumab (Aimovig) but couldn't access the medicine afterwards until she found TheSocialMedwork.

    Alexandra

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  10. Cristina's story

    "I heard by chance about a new clinical trial for migraine (for the substance that would become Aimovig) on the radio and the doctor encouraged patients to write to him to see if they were eligible candidates. So I did write and they accepted me for the trial. This trial was going to be 18 months long."

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