Patient stories

  1. I love someone who is rare

    In recognition of Rare Disease Day, our colleague, Sera, shares her story of her dad's fight with Multiple System Atrophy (MSA). 

    rare patient with heart

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  2. Teresa's story: how ALS changed my life

    Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.

    teresa: caregiver story

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  3. Zoran's story

    This is a personal account of Zoran, a client of TheSocialMedwork's who made it his life to help raise awareness of amyotrophic lateral sclerosis (ALS) in Bosnia after his own diagnosis.

    Zoran Image

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  4. Alexandra's story

    Alexandra was lucky enough to be on a clinical trial of the new migraine treatment erenumab (Aimovig) but couldn't access the medicine afterwards until she found TheSocialMedwork.

    Alexandra

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  5. Cristina's story

    "I heard by chance about a new clinical trial for migraine (for the substance that would become Aimovig) on the radio and the doctor encouraged patients to write to him to see if they were eligible candidates. So I did write and they accepted me for the trial. This trial was going to be 18 months long."

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  6. Michel's story

    Michel has chronic migraine and shares his experiences seeking a treatment that works and his advice for other migraineurs. Image: stock - Michel wishes to remain anonymous.  

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  7. Abdur’s story


    Abdur was diagnosed with ALS in 2016. His uncle, Jamashaid, shares his story and how Radicut (edaravone) has helped Abdur to live better with ALS.

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  8. Francine's story


    My father, who was a general practitioner before he retired, was with me when we heard the official report of the neurologist. Afterwards, sitting in the car, he had to digest the fact that both his son and daughter had multiple sclerosis.

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  9. Danny's story


    In March 2014, Danny had just become a father for the second time when he was diagnosed with a rare form of cancer in his liver.

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  10. Vito's story


    My mother was diagnosed with lung cancer and had been treated with a standard chemotherapy combination therapy and Xalkori (crizotinib), the other first in class before Alecensa...

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