Good to know

  1. For those who are searching: hop online

     We live in an age where you can hop online to order a new brand of lipstick if it hasn’t been released yet in your country. 

    Woman using a laptop

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  2. Telling your child you have cancer

    Suggestions from cancer survivors and their children

    kid parent cancer

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  3. Dealing with a Diagnosis

    Online counsellor Nicole Hind shares how to help our brains and bodies deal with a diagnosis.

    diagnosis dealing

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  4. How effective is Radicava/Radicut (edaravone) for ALS?

    An easy-to-understand infographic displaying the results from the clinical trial

    Radicava Radicut ALS

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  5. Radicava is now available in the US – What does this mean for me?

    For US patients and patients worldwide with ALS.

    radicava USA

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  6. ALS awareness month

    What did we get up to, and what's next?

    ALS awareness

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  7. 5 things you need to know about multiple sclerosis (MS)

    Get the latest news on MS research, the FDA approval of Ocrevus (ocrelizumab) for both relapsing and progressive forms of MS, insights and resources.

    multiple sclerosis

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  8. A patient’s right to try

    Mirjam Bink’s story about her father and his attempt to access a new treatment for multiple system atrophy.

    Mirjam Bink father multiple system atrophy

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  9. Marriages, businesses, and lots of bubbles!

    How our community celebrated remission!

    bride tossing flowers

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  10. Apps that help patients stay connected to their friends and family

    As a patient, would you benefit from apps that alerted your support network every time you visited the hospital or had a few spare minutes to chat? Almost definitely, right?

    apps for patients

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  11. The three (free!) things that patients told us helped them get through their worst days.

    Fighting an illness is rarely as simple as diagnosis-plus-medication-equals-improved-health.

    woman smiling

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  12. 20 Things You Need to Include in your Hospital Bag

    We asked our community of patients what they recommend packing in a hospital bag, and the response was overwhelming.

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