Good to know

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  1. A patient’s right to try

    Mirjam Bink’s story about her father and his attempt to access a new treatment for multiple system atrophy.

    Mirjam Bink father multiple system atrophy

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  2. Marriages, businesses, and lots of bubbles!

    How our community celebrated remission!

    bride tossing flowers

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  3. Apps that help patients stay connected to their friends and family

    As a patient, would you benefit from apps that alerted your support network every time you visited the hospital or had a few spare minutes to chat? Almost definitely, right?

    apps for patients

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  4. The three (free!) things that patients told us helped them get through their worst days.

    Fighting an illness is rarely as simple as diagnosis-plus-medication-equals-improved-health.

    woman smiling

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  5. 20 Things You Need to Include in your Hospital Bag

    We asked our community of patients what they recommend packing in a hospital bag, and the response was overwhelming.

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  6. If you have ALS

    If you are experiencing ALS too, this page was written specifically for you.

    Garmt van Soest

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  7. 10 Things You Need To Know About Multiple Myeloma

    Multiple myeloma is a treatable but incurable blood cancer that typically occurs in the bone marrow. 

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  8. 8 Gifts Patients Really Want (From Real Patients!)

    When someone you love is battling illness, it’s natural to want to reach out and help in any way you can. Knowing how you can help isn’t always so clear.

    bed

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  9. Medication Reminder Apps That Think Outside The (Pill)Box

    We start new medications and treatments with the greatest of intentions, but everyday life often has other plans.

    Medication reminder apps

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  10. 6 Incredibly Useful Apps for Cancer Patients

    If you thought your smartphone’s only use during your treatment was accessing Candy Crush in the waiting room, you thought wrong.


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